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Agenda

Agenda

The Summit of Strength offers informative presentations from local and national experts who have experience specific to spinal muscular atrophy. Each summit presents a unique agenda of topics. 

  • Cure SMA Update - Kenneth Hobby, President
  • Aquatic Physical Therapy 
  • The Development Journey of Spinraza (musinersen) - Biogen
  • SMA Pulmonary Standard of Care for SMA
  • A Closer Look at Evrysdi - Genentech 
  • Service Dogs
  • Biohaven's Resilient Study - Biohaven Pharmaceuticals
  • SMA Clinical Trials and Research Update
  • Adult SMA Management and Research Update
  • Pediatric SMA Management and Research Update