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Agenda

Agenda

The Summit of Strength offers informative presentations from local and national experts who have experience specific to spinal muscular atrophy. Each summit presents a unique agenda of topics. 

  • Cure SMA Update – Lisa Belter, MPH
  • The Being in Doing – Wendy Godfrey
  • The Development Journey of Spinraza – Biogen
  • Service Dogs: Safety, Independence, Confidence – KateLynne Steinke
  • Going Places with Evrysdi – Genentech 
  • Hippotherapy - Vicky Carregal, MSPT, AHCB
  • Novartis Gene Therapies: Pioneering Gene Therapy – Novartis Gene Therapies 
  • SMA Clinical Trials and Research Update – Omer Abdul Hamid, MD

Disclaimer: Medical or legal opinions expressed or shared should not be substituted or interpreted as personal medical or legal advice. Please consult your healthcare provider regarding any health-related concerns.