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Agenda

Agenda

The Summit of Strength offers informative presentations from local and national experts who have experience specific to spinal muscular atrophy. Each summit presents a unique agenda of topics. 

  • Cure SMA Update – Mary Curry, ND
  • Navigating the Special Education Process – Tina Lewis
  • An Overview of Biogen and Our Commitment to the SMA Community – Biogen 
  • Navigating Social Security and the DAC Program – Cynthia Macluskie
  • Going Places with Evrysdi – Genentech 
  • Service Dogs: Safety, Independence, Confidence – KateLynne Steinke
  • Cure SMA Chapter Introduction – Angel Wolff 
  • Novartis Gene Therapies: Pioneering Gene Therapy – Novartis Gene Therapies
  • SMA Clinical Trials & Research Update – Saunder Bernes, MD

Disclaimer: Medical or legal opinions expressed or shared should not be substituted or interpreted as personal medical or legal advice. Please consult your healthcare provider regarding any health-related concerns.