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Agenda

Agenda

The Summit of Strength offers informative presentations from local and national experts who have experience specific to spinal muscular atrophy. Each summit presents a unique agenda of topics. 

  • SMA Physical Therapy Standard of Care
  • A Closer Look at Evrysdi - Genentech 
  • Financial and Estate Planning
  • The Development Journey of Spinraza - Biogen
  • Mental Health Challenges & Strategies for SMA-Affected Patients & Families
  • SMA Clinical Trials, Research, and Treatments Update
  • Biohaven Resilient Study Update - Biohaven

You can find the resources from presenter Richard Rubenstein here: